Monday, February 16, 2015

What is More Powerful Then Pain?


Pain is one of the most powerful adversaries that we face on this earth. It does not matter if it is physical or emotional pain, either can alter your life permanently.  It changes the way you view life, the way you live it and what you believe in.  Pain often does mean change. Most people hate change, especially when it was not our choice to make that change. We don’t know if it is going to be a change for the worse or for the better and the unknown is feared beyond all else.  What makes us human though is the different ways we deal with pain and the sudden changes to our lives. How we react and ultimately how we overcome the adversity using it to help us grow into better versions of ourselves is testament to our personal spirit and character. 
Thankfully there are gifts we are given that are stronger than any pain we may go through and are what see us through.   Our resilient spirits and our innate belief in faith, hope and love are the strongest power on earth and in the heavens.  Even now I balance on the ledge of acceptance of my new life. I am thankful for the blessings I received in the outcome from the pain and I still hope that my health will continue to improve.  The love I received from my family, friends and church family made all the difference in my fight so I was able to go on.  As did my faith in an ever present and omnipotent God who guides me through deep waters and burning fires protecting me from serious harm and helping me to continue to fight and grow to be stronger on the other side of the trial. True my body is not as strong as it once was, but the increase of strength and wisdom in my soul and spirit more than make up for the loss. 
      Our lives are made up of seasons of joy, sadness, growth, decline, trials and triumphs; because of these we change in many ways.  Fighting for your health is another one of these seasons and does not have to be the end of the other seasons. It is just another season we will pass through.  You must not rush yourself though; take the time to mourn and feel the range of emotions that come. Look for the lessons that can be learned to make this a season of growth. You found this page and therefore you are fighting!!!  This is another very hard concept to swallow in the middle of the fray. When you are on day 78 of a headache, any kind of severe pain or depression it seems as if it will never end.  The most important thing you can do at that point is to find a friend to talk to and take it one day at a time. Just make that one day as good as you can.  At that point you can not even imagine an end to the suffering, but I am here to tell you that it does come. I can see the sun on the horizon and you will get there too if you have not already.
     As you learn to make each day as good as you can, you learn the lesson of how to truly live in the moment. You learn to pay better attention to the small joys in life that you once took for granted because you were focusing on your five year plan.  You also become hyper aware of what you sincerely cannot live without and what is superfluous.  Your priorities and their order come into stark reality as you realize that your desire for a new fancy house come before your loved ones or your desire to be a size 4 is atop of giving back to others.  Your new set of priorities gives your life a new joy and purpose that you may not have felt before as you learn to take your eyes off yourself and onto others. This is how it was for me. My desire for owning my own home was knocked down several rows as I realized how much I was missing of my daughter growing and the encouragement  in my marriage and friendships.
        We may have to switch careers, or go from climbing the career ladder to a stay at home parent or work at home job as I did.  You will adjust and find new passions or old ones may come back to life. You will learn who your true friends are when you tell them about your ailments for the tenth time that week. The friends that stick around will be your friends for a lifetime. Your pride takes a blow when you have to lean on others more then you ever thought you would need to. Then you learn that many people are more than glad to be there for you because they love you for you and not for what you do for them.   The individual that can ask for help grows in honest confidence because they learn that their self-worth does not lie in their physical body and abilities but in their character.  Asking for help also gives the other person the opportunity to bless you and grow themselves.  Whenever two individuals go through a trial together they bond in a way that cannot be replicated and lifelong relationships are born.    
        I also discovered the reality of my story only being a small part in a larger story. Our lives affect the outcome and circumstances of many others lives in the present and future. I want the way I react to the trials in my life to have a positive effect on the bigger story. We will not be remembered for the size of house we lived in but for number of friends and family that we invited into our little house and our lives despite that difficulty. Pain is powerful is it not?  
      I am good with where I am at now and thankful for this season of hardship and pain. Yes I wish I had a few less aches and more energy but I wouldn't trade the lessons that I have learned and the growth I have made.  This series of events somehow has resurrected old dreams and opened doors that were locked tight before it.  My relationships are more meaningful and my desires are a little less selfish.  At the beginning of my battle when I was still trying to figure out what I was suffering from I certainly would not have agreed with any of this in any shape or form.   Nor would I accept that I would be the one who would write it in two years. 
      I had a wise friend who went through the same battle make a similar statement and I accused her of giving up.  I apologize now to you my friend. You told me I would come to the same conclusion and I have. I thank you for your encouragement.  This is not a state of mind that I easily or quickly achieved. I fought the idea of accepting anything but returning to my old life exactly as it was before. I had to reach the depths of despair as I call it, and look at my brokenness and inability to control the situation to figure out how I was going to get my life back in any form.  I finally accepted that it was not going to go back to the way it was.  Once I did I felt a new motivation to make this new season of my life mean something There is a Katy Perry song that says “I picked myself up off the floor, put one foot in front of the other and looked in the mirror and decided to stay”.  It was as simple and as difficult as that.  I had to accept that I could not change what had happened and I was going to go ahead and change my attitude and perspective. I also got to a mental health professional ASAP and got some help, as depression is a sibling of chronic illnesses that cause pain.  It is a personal mental battle to find peace in the outcome and the knowledge that you did everything possible to get better. You hopefully can see how your battle has helped you to become a better version of yourself despite the pain that may still linger.  That pain becomes a reminder that you are a work in progress as are those around you. 

We must reach out and join together to fight, overcome, grow and live a life that we could have never lived on our own.  Pain is powerful, but when you dig down deep and then reach out to others for help and to give help you find that it is no match for your human spirit.   

Give Katy Perry’s song By the Grace of God a listen. It is a great song to give you a lift and a few goose bumps.

May you find peace and comfort,

        Cassandra

Thursday, February 12, 2015

A Little About Me


My four year old daughter, husband, parents, our church family and a few great friends are what my life now consists of. Gone are the days of chasing a fancy career with matching salary. My amazing, hardworking husband has allowed me to be able to stay at home due to my illnesses.  

 I currently have a BS in Interior Design, a teaching license in Early Childhood Education and have finished half of a masters in Special Education.  We live in the beautiful city of Denver, CO which is convenient since my favorite place to be is in the mountains.  Camping, skiing, hiking, driving; I do not care as long as I am surrounded by trees and peaks. Nature is my sanctuary. These days of course skiing and hiking are not possible but I hope someday I will be able to once again partake in them.

At home I am usually doing the regular house work if it is a good day. In addition to rearranging my house in some way, redecorating, playing and working on preschool basics with my daughter and of course writing and getting to know all of you.

Before 2013 I held one or two jobs and was also working on my masters.  I was go, go, go!  As I am sure most of you were until severe illness entered our world.  I was trying my darndest to measure up to the world’s standard of a 33 year old Woman.  I wanted to be the working mother who brought home a sizable salary, wore a size 8, cooked, entertained and decorated like Martha Stewart, all while being a doting wife and mother. I wanted to make the world a better place, make my mark and do everything I could to give my family the best life possible.  However you describe it though, these numerous ambitions killed my dreams. Unfortunately I also had an auto immune disease that was not being controlled on top of my insane schedule and the pair was lethal.    

      My world was altered for good in late 2013 with a final diagnoses of fibromyalgia in addition to the other auto immune diseases and their negative side effects that I had been diagnosed with over the years. My OHoHHHhhhHHHASDF health did not change overnight but slowly declined beginning when I was in my mid-twenties.  When my doctor finally told me my headaches and fatigue were a result of severe stress, I did what I could to slow down, but it was too late. The preverbal ball had been rolling for far too long.  

Compared to the beginning of my journey when I suffered through daily migraines, spent half of the week in bed and only left the house to go to a doctor appointment; I feel that I have improved quite a lot.  I am able to leave the house most days to attend church, have a playdate and do the normal mom errands. I am still not able to work because my body does not work on a normal 7 to 5 schedule that a normal adults does but I have decent energy by noon. Instead of spending my precious energy on working I am thankful to be able to spend it on my daughter.  I still must be careful not to push too hard or do too much when I feel good. If I need to I just make sure I can spend the next day resting and sleeping a little more.  ME/CFS and fibromyalgia are very inconvenient diseases.  I make a list of things that need done and get as far as I can until I hit that feeling of fatigue that says that is enough. Before I hit that inevitable invisible wall and have to spend the next day in bed. I try to look at my life now as a lazy housewives.  I try not to focus on what I didn't get done but what I did.    

          I am currently still trying to improve a little every week or month. I have accepted my limitations but do not believe that I will be in this condition for the rest of my life.  It is a funny tight rope of resignation and hope.  On my bad days I sleep most of the day and try to remember that I will not feel like this for too long, eat as healthy as possible and rest up so that tomorrow will be a good day. Every morning and every night I take a handful or two of medications, vitamins and supplements. My faith has been one of the only reasons I have made it through this trial, in addition to my amazing family and friends.  After three years I found a wonderful doctor who is a specialist in strange invisible diseases like chronic fatigue syndrome, thyroid problems, fibromyalgia and others. He has me on the best possible medications that are available for my illness and is very encouraging as he assures me that he is constantly researching new methods for treating and discovering the causes of my health problems.   

          My story is one of thousands like it. It may be very similar to yours. If that is so I am sincerely sorry that you too had to go through this painful experience.  My goal for this blog is to connect, commiserate, encourage and support others who are going through this scary, painful journey. When you are unable to leave your house for many days in a row, alone is the only thing you feel. This page is here for you find comfort.

 May you find peace and comfort on every bad day and remember to live in the moment on every good day. Most of all don’t forget that there is someone here for you and you are not alone.

Sincerely,

     Cassandra Schaneman Rodriguez     

Wednesday, February 11, 2015

Welcome and Thank You for Clicking!



       This blog is a product of my battle with Fibromyalgia and other invisible illnesses that permanently and completely changed my life. My eyes and heart were opened to the thousands of others who have already spent decades living with chronic pain and the many types of invisible illnesses such as; chronic fatigue, fibromyalgia, and chronic pain from many others.  Most of these syndromes or diseases are unknown to the general population, as well as not being recognized by too many doctors. So we must be making it up and it’s all in our heads right!

     During my search for answers I looked for a website or blog that told the real story and was similar to what I was going through; without the bull about eating like a bird or yoga as a way to “live with it”. No grain, no sugar, no diary (what’s left?), meditating, or practicing yoga as a cure in itself and simply sugar coating over the real pain. These things may help yes, but there is a multitude of other aspects involved when fighting one of these illnesses. Every single part of your life is invaded. Not only do you experience physical pain, but also the emotional and mental pain that is much more ruthless and agonizing. It strips away your self-worth, pride and for some, the desire to live. The thought of having to live your life in any kind of constant pain is petrifying to everyone.

      There is so little that the main stream medical field knows about Fibromyalgia, CFS, ME, and the other illnesses like it.  Most who become sick with one of these sees doctor after doctor searching for someone who knows anything, while continuing to suffer for years. We waste thousands of dollars and loose hope by the day. 

     It is possible to get your life back! Many who do recover find that what they have learned by going through the fire is just as life changing as the effects of the disease itself.  There is HOPE!  Many sufferers who recover do so by researching for months or years on their own. We must be our own advocates!  It is a scary, lonely, painful journey and no one should have to walk it alone since the medical industry is driven by dollar signs instead of sincere care. The main goal for this blog is to firstly commiserate and assure the reader that they are not alone. Then support, encourage and maybe help identify an illness. I absolutely do not want to make you think that I know everything about these illnesses, I simply want to share all of the treatments, medications and lifestyle changes that I have tried that helped me and regain part of my life.

       A different topic will be covered weekly to allow for a conversation between readers. As well as sharing the great doctors that we have come across, new research I have done, and words of encouragement. Again I do not want to be the only one contributing and I hope that you will share your journeys. 

     The more information we have the more we can share with others and raise awareness of these illnesses to help others recover their lives and end the judgments and preconceived opinions.

           If you can relate to my journey or know someone who might, please share this site, put it on your favorites list or request it to be sent to your email with every new post.  Help me to reach as many people who suffer daily as possible. My mantra, This life was not meant to be lived on our own and you are not alone!

Thank you so much for clicking and reading and may your day be filled with peace and comfort. 

Please Give this song a listen! Amazing encouragement for any bad day.
Britt Nicole The Sun is Rising
http://www.bing.com/videos/search?q=Britt+Nicole+The+Sun+Is+Rising&qpvt=Britt+Nicole+The+Sun+Is+Rising&FORM=VDRE

Sincerely,

Cassandra Schaneman Rodriguez